Much genetic research is predicated on study subjects being anonymous, but increasingly researchers are discovering things these subjects, or their relatives, might need or like to know.
""We are living in an awkward interval where our ability to capture the information often exceeds our ability to know what to do with it."
http://www.nytimes.com/2012/08/26/health/research/with-rise-of-gene-sequencing-ethical-puzzles.html
-Tom.
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